In this series on transition to adult medical care, we’ll discuss tips and strategies from parents, providers, and family advocates for those who are starting to navigate the complex process of transitioning out of pediatric care and into adult health care. Thank you to Dr Raina Voss and Joy Gehner for their help in organizing the series.
A young man with chronic lung disease
In this guest post, a parent shares their experiences both frustrating and enlightening, about being the parent of a youth with the chronic illness, asthma. Though this illness is well known, it is still complicated.
My son is now 20. He’s been followed by medical specialists since he was three weeks old, for asthma and also for treatment of the numerous bone fractures that he was susceptible to because of his medications.
People – even doctors – often think of asthma as something you’ll outgrow. But asthma is a tricky disease. In my son’s case, it didn’t seem to follow a clear path and we dealt with lots of misunderstandings and heartaches over the years, trying to figure out causes and treatments. On occasion, when he was extremely ill, we were referred for additional testing – but all that was ever identified was severe asthma. Read full post »